Sunday, June 13, 2021

Life with Leukemia (And Some Reading) June 13

It's Sunday Post time!  This is hosted by the awesome Caffeinated Book Reviewer and gives us all a chance to recap our week.

This has been a bit of a stressful week.  One of Will's counts came back wonky so he didn't get IV chemo but at this point it's not really anything to worry about.  These kids get so much medicine over so long of a time that sometimes their bodies need a rest and that's what was most likely going on here.  Because he didn't get the IV chemo and just has been doing oral chemo he's actually feeling pretty good and there are no symptoms that anything more serious is going on which is good.  We are on week 35 and the fact that means there are best case scenario 85 weeks to go is wearing on us a little.  They told us when Will was first diagnosed that it's a marathon not a sprint and that's really hitting home right now.  The long term treatment is why the cure rate is so high so I feel guilty feeling worn out by all of it.  We also have gotten bad news about 2 families we've met over all this.  One learned their child has had a relapse at week 114 and the other got unbelievably bad news.  Both had the same diagnosis as Will so it's hit us pretty hard even though his treatment is going great.  It's brought home that anything can change on a dime I think.

I've been trying to keep myself distracted so in between video games with Will I've been playing GeoGuessr and it's been a nice distraction.  Basically it drops you down anywhere in the world using Google Maps and you can kind of move around to figure out where you are.  Then you guess and it tells you how close you were.  I've been weirdly close and crazy off but it's been fun.  I only do 1 game a day which is 5 maps because any more and you have to pay for it but it's been a nice bit of distraction.  I've also been reading and feel like I've managed to avoid the slump I felt was coming on last week.


The Listening House by Mabel Seeley and House of Many Shadows by Barbara Michaels

Listening:  Hitting the Books by Jenn McKinlay - I've read this but don't remember it at all so I thought I'd listen to it before I marked this series done.

I'm still not watching much other then YouTube though really I've mostly been listening to audio books and not watching anything.  I miss getting into a really good show or movie but it hasn't been happening lately.

Have a great week and happy reading!


  1. I'm sorry to hear about this week. I imagine it must be awful having to deal with the uncertainty. And when others that you've gotten to know get bad news that must be devastating (and my prayers for them). Hang in there. Sending lots of prayer and good vibes your way... Geoguessr sounds fun, I've been meaning to check it out since you mentioned it on my blog- I love games like that!

    I LOVE love love that cover of Listening House!!

  2. What a week for you guys, so sorry. I had no idea the treatment was such a long process. Positive thoughts for strength and results are going your way.

  3. I can just imagine the stress and worry that everyone is going through right now, but I do believe that God is a Healer, and the power of prayer. As always, even though I may not be online, you're in my prayers and thoughts. That game sounds interesting, but when it comes to anything geography related, I totally suck(lol), so who knows where I'd say I was.(lol) I'm that person who still uses map quest to get around, even though I have a GPS in the car!(lol) Sending lots and lots of hugs, RO.

  4. You are all in my prayers. I am going to share GeoGuesser with my husband. Hope this week is a good one.

  5. I'm so sorry to hear its been a stressful week. I hope this week goes better...take care and best wishes to you all.

  6. I'm sorry it was a rough week and wow it is a long process. You have to do the best you can and try not to compare to the others as Will has his own fight. And he has been doing well. Stay positive as that can only help. Take care of yourself, too.

    Anne - Books of My Heart This is my Sunday Post

  7. I think of you often and yes what a marathon. If I had one wish for you it would be for you to let go the guilt and be gentle with yourself. Yes its hard and it is wearing on you. Take yourself gently, and do whatever you can to care for you. Audiobooks are so good for times of stress aren't they. Geoguesser sounds wonderful. Now do I want to get into it and addicted to it? When a good friend of mine had cancer I used to do jigsaws, it rested my mind.

  8. I am glad Will has been feeling well but hope his counts get back on track soon. It probably is nothing to worry about, but as a mom, I am sure you cannot help it to some extent. I am so sorry to hear about what those other two families are going through. It must be so hard. It's no wonder you to feel tired--you've been dealing with this practically nonstop since he was diagnosed. Sending hugs and positive vibes your way. I hope reading helps you escape some and am glad to hear that playing games helps. I am sure Will enjoys the time with you. :-) Take care and I hope it's a better week.

  9. I'm sorry this has been such a tough week. Sending hugs and praying for continued strength in this marathon.

  10. It sounds like it was one of those weeks - sending prayers and good vibes your way.

    And thank goodness for Barbara Michaels comfort reads!

  11. Sorry it's been that kind of week. Hurts my heart to read about kids suffering. Glad you've been trying to take care of yourself as well. Hugs to you both.

  12. Katherine, go easy on yourself. You are going through such a tough time and are rising to the challenge in a superior way. I hope Will's counts improve very soon to where they want them. Prayers continue for your family.
    GeoGuesser sounds interesting! I hope your reading mojo stays strong this week!