Sunday, July 5, 2020

Our New Normal - Leukemia Edition

It's Sunday Post time!  This is hosted by the awesome Caffeinated Book Reviewer and gives us all a chance to recap our week.

We are officially in our new apartment, the internet is setup and we are officially starting our new normal.  My husband has successfully worked from home here a couple of days and I think I've figured out the route to get from the apartment to St Jude without becoming convinced I've gotten turned around and am hopelessly lost.  We are getting used to apartment living and living in a much smaller area.  The cat thinks it's absolutely fantastic and is loving all the windows and all the people coming and going.  The building we are living used to be a distribution center for Sears and is this ridiculously massive building with exposed brick and pipes and all kinds of other industrial looking features.  On the first floor is this tiny little market with a hot bar, a coffee shop, a pizza place, an ice cream shop and all kinds of other things.  We are not nearly cool enough to live here but it's kind of fun and it's nice to have so many options so close.  

Treatment is going well but we are only at the beginning of a very long road.  We are in phase 1 one of a 3 phase process that should last two and a half years.  So far he's gone through everything with no real issues other then extreme fatigue and the medications making him hungry constantly.  This coming week will be a long one and Tuesday will be a pivotal day as it will be day 15 of chemo and the results from the testing then will shape how we proceed for the next few weeks.  

I've been reading again and will have a new post (maybe two) up this week.  Both the reading and the writing reviews has been a nice distraction.  I'm hoping to do some blog visiting but time is at a premium and trying to comment on my phone drives me crazy.  

Thank you so much for all the well wishes and kind thoughts.  They've meant a lot.  If anyone is interested in joining his Facebook group you can find it here - https://www.facebook.com/groups/386657402290255

Hope everyone has a good week.

26 comments:

  1. Praying for your son and that the treatment goes well. I was horrified to read what happened and sending all well wishes and good vibes your way. It sounds like you're in a great place and I hope all your news is good news.

    Glad you guys are getting settled in. "We are not nearly cool enough to live here" *smile* Isn't it funny how some places are like that, all hipsterish? I've always liked the exposed brick/ pipes look...

    Take care this week and again, sending prayers and best wishes...

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  2. I am glad you are all settled in and the place does sound cool.I didn't know it would be such a long term medical process, wow, 2 1/2 years. The book I mailed made it to Memphis but with Saturday being the 4th it got hung up with delivery.

    You and your family are in my thoughts so much, please let me know if I can do anything for you, yes from afar! If I wer eon FB I'd definitely join the group. So happy the cat could come too!

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  3. I am glad you guys are getting settled and have your apartment. I pray for Will every day and I love seeing the updates that he is doing so well.

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  4. Constantly in my thoughts throughout the week, Katherine. Glad you have found a suitable flat, which looks amazing. Sending prayers your way - I recall the roller coaster time we had when my youngest sister was seriously ill aged 13... Take care.x

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  5. Hi there Katherine! Thinking of you... I am glad that you are finding our way (in more ways than one) and that you have your cat with you! That's the kind of company one always need.

    Strongs to you and your family.

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  6. I wish you and your family all the best Katherine. Your apartment sounds lovely. Take care and many virtual hugs and prayers to all of you.

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  7. I'm glad the treatments are going well. I will keep you and your family in my thoughts and prayers in coming days and weeks.

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  8. I'm glad you're settling in and so far so good. I wish you the very best on this long journey.

    Anne - Books of My Heart

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  9. You've all been in my thoughts and prayers this week. Glad treatment is moving along smoothly and you're settled in the apartment. Will you stay there the entire time?

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  10. I am glad the set up is working and you are adapting. I love the idea of having a market on the first floor. I hope treatment goes well. Stay positive!

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  11. Oh my goodness I can’t imagine what you are going through but you sound like you are all coping so well. Sending hugs!

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  12. This is my first time visiting but I hope the treatments go well and the early results are good. Take care!

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  13. I'm glad your son's treatment is going well. What a cool bldg you live in.

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  14. It sounds like you are settling in and things seem to be falling into place. I know this isn't an easy journey for any of you. We are all praying for you.

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  15. The new apartment sounds kind of awesome. Wow, that’s a long treatment. I’m glad it hasn’t been too hard on him so far. Take care of yourself!

    Aj @ Read All The Things!

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  16. Sending positive energy your way as you work through the process of treatment. Your place sounds great. Hang in there, and stay safe.

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  17. The building sounds amazing, certainly different kind of place. I love that the cat loves all the windows. Fingers crossed for Tuesday. Thanks for sharing your journey so that we can we with you from afar. Sending love across the seas.

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  18. Two and a half ye4ars, wow. Prayers and hugs for all of you. <3

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  19. I'm so glad y'all are settling in. So glad the treatment is going well so far. Once you get used to it, Memphis is pretty easy to get around in! There is also lots of things do to there when your son feels up to it. Keeping y'all in my prayers and sending good thoughts your way.

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  20. I hate that your family is having to deal with this. I am glad to hear that you are settling in and your apartment sounds wonderful. I hope that this week's treatment isn't too tough on your son. Thinking of you.

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  21. I've so out of the loop (I've been awol from blog stuffs) and therefore I'm just catching up.

    I'm so sorry to hear about this! I'll keep everything crossed for your son (and your family) as he goes through his treatment. Truly... I have no words.
    I believe your son is a similar age to my own (9 yo?) and I swear my heart hurts for you right now. I can only imagine how hard it's been.
    I'm glad you're settled in a new home and I wish you all the best!

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  22. Sounds like things are going as well as they can be. I hope this continues to be the case. Hang in there!

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  23. Wishing you all continued strength and the best possible news on Tuesday.

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  24. Obviously the circumstances aren't great, but it sounds like you are making it work and doing the best. I can see how the reading world would be a good distraction at this time. Once again, my positive thoughts are being sent towards you & your family.

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  25. I had no idea that it was going to be such a long road medically for all of you. That sounds draining and overwhelming but kids are resilient. I was ten when I beat kidney failure and I think it was tougher on my parents. I found it easier to accept and deal and go day by day. My thoughts will be with you all through the treatment.

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