Sunday, August 2, 2020

This Week in Our New Normal - Week 527 (at least)


It's Sunday Post time!  This is hosted by the awesome Caffeinated Book Reviewer and gives us all a chance to recap our week.

This week was a long week.  Nothing particularly bad happened but Will was on a new medicine that made him really out of it and zombie-ish.  Luckily he's off it now and is spending some time sleeping it off but when he's awake he's back to himself which is good.  We were discharged from the hospital Sunday afternoon and had a few long days here and there.  This week seems like it'll mostly be a recovery week to try and get his numbers up before he has his bone marrow test and spinal tap.  This will show if he's ready to enter the 2nd phase of treatment which sounds like it's a mix of down time and intense time.  I'm not sure if this will start the 120 weeks of treatment or if the 120 weeks is phase 3.  

He's been nominated for Make A Wish by one of our team (not unusual - basically if you are at St Jude you qualify) so we've had a good time coming up with ideas.  It's been a good distraction in waiting rooms and stuff when he's awake enough to talk but not really awake enough to do anything.  And we got a Lite Brite from Concierge the other day at the hospital.  I'm super excited about it because I loved Lite Brite as a kid and I think it'll work for a good activity for when he's got a little more energy.  They're much thinner then they used to be and there are lots of refill pages on Amazon so I think it'll be great.  If he doesn't like it I might use it!  We've also been playing lots of Animal Crossing and have enjoyed visiting other islands.  

In non-Leukemia news I've gotten a lot of books and am having a good time organizing them and deciding what to read next.  I'll have to do a show and tell soon.  I discovered the coffee shop on the first floor of our building serves New Orleans style (chickory) Iced Coffee and I've been loving it.  Pretty much 90% of my non-hospital meals have been the Iced Coffee and then the queso dip and tortilla chips that the market in our building sells.  When we head home I will miss those!  

Only one blog post last week but this week there will be a few.  I have a Middle Grade review that will be up Monday that was written back at the beginning of June in another life.  And I have a review for a historical mystery that I'm still reading but is so far really good.  I tried to do some blog visiting yesterday but my Bloglovin feed was really glitchy so I ended up giving up.  Hopefully this week I'll do a little visiting.  

I hope everyone has a good week and is reading fantastic books!

20 comments:

  1. I remember Lite Brite! How fun. And mmm queso dip and chips- I could live on that lol. Glad to hear that Will is feeling more like himself. Sending lots of support, and hoping you guys have a good week. Take care and hope your books are good as well!

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  2. Hmm Lite Brite is a mystery to me! I'll google it when I have finished blog visiting. Such a journey you are on. Good that you have some books come in, will be looking forward to a show and tell. Take care, savour the coffee.

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  3. I've never heard of that dip though I'm not surprised as I'm not an adventurous eater! I stick with cheese or onion/chive mild dips, or a mild BBQ sauce! Best wishes to you all!

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  4. I think my mom still has my old Lite Brite. That was also so much fun.
    I am glad things are moving forward with Will. Your family is always in my thoughts. I am glad I am able to follow his journey on FB.

    Hugs to you! Hope this week is awesome for you! Happy Reading! xx

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  5. I promised myself I would do chores before enjoying blog surfing and answering emails yet - here I am! I set a reminder to get off soon so I can do email in the afternoon. So we can catch up then.

    I love the fact that he is out of the hospital for now and please let me know if I can send you any books for you or your son. Doug and I think about you all often, big hugs from us and chat with you later.
    xo

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  6. I hope this coming week is better for Will. I am glad he is out of the hospital. I remember Lite Brite. :-) I had one too. I bet my daughter would have fun with that, and may have to see if I can find one for her. I hope you enjoy your reading. Take care, Katherine. Stay safe and well.

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  7. First of all, glad Will is doing better and I hope this week will be restful for both of you, with energy coming back. Lite Brite - blast from the past with that one, though I was too old for it - my siblings had one. And New Orleans-style coffee and queso - yum! Take care and remember we are all thinking of you, praying for you, and sending healing support to you guys. Big hugs!

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  8. Delighted to hear that Will is improving. I looked up Lite Brite and it sounds like great fun. Chicory coffee?? My Gran used to speak bitterly of having to drink it in the war - she hated it:)). In the meantime, still thinking of you and sending positive thoughts in your direction. Take care.x

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  9. I'm glad everything is going well so far. Wishing you the best.

    Anne - Books of My Heart Here is my Sunday Post   

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  10. My kids loved Lite Brite! Sending hugs and good wishes for this week.

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  11. I remember that Lite Brite too, and it was such fun!I've been sneaking in some queso dip and chips at home for breakfast a few days last week, and it was yummy! Glad that Will is feeling a little better, and continuing to send hugs to you all! Back to a Sunday binge of Flea Market Flip on Great American Country(GAC)! (lol) RO

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  12. You sound so positive, which is a good thing. St. Jude's is the best place to be, and I am sending positive energy your way.

    Enjoy your books!

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  13. I am glad things are going pretty good and that he isn't on that medicine that was making him zone out. I loved Lite Brite as a kid! So fun...lol. Can't wait to see your show and tell of books you got when you get time! :)

    Have a great week and happy reading!
    Stormi

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  14. I never had a Lite Brite but I've always thought they were cool. That's wonderful your son is getting to make a wish; I have always assumed the candidates were children whose prognosis were terminal. It'll be fun to read about what your son wishes for and how it plays out. Yay for finding new books and that coffee sounds good even though I'm not a coffee drinker.

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  15. I’m glad Will is doing okay. I had a Lit Bright when I was a kid. It was a big boxy thing, like an old computer monitor. I guess Lite Bright technology has improved. Have a great week!

    Aj @ Read All The Things!

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  16. I’m glad Will is doing well enough for discharge.

    Wishing you a great reading week,

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  17. I hope a Will is getting on ok, he sounds incredibly brave.

    I’ve never tried chicory coffee, it sounds nice!

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  18. Sending hugs to you, Katherine. I'm glad he's doing okay. ♥

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  19. Oh my goodness, I remember Lite Brites! I used to love them. I hope it brings some joy to you and your son during these crazy times. Hang in there!

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  20. I'm so glad your mother started the group on Facebook. It's been good to see the Tornado's progress. I wish I could be there to give you all hugs. He's a resilient boy, you should be very proud. 💜💜💜

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